bros Posted May 14, 2015 Report Share Posted May 14, 2015 (edited) Hi guys. So I haven't been around in a while, life without CN has been similar to life with CN :P. MK is doing well on their forums. I graduated college a year ago next week. Still looking for work, but recently, I had to suspend my job search. So, now to get to the point of the topic. In March, I had some routine blood tests performed because of my epilepsy and the results were abnormal, in a rather unexpected way. So my neurologist asked me to get it repeated at a hospital that he had privileges at. The blood work was still abnormal, so my GP told me to go to a hematologist/oncologst, which I did. He was very confused by my blood work, and did a bone marrow biopsy on April 15th (hurt quite a bit). He eventually referred me to a specialist at Columbia University Medical Center, who I saw last week. He said I have either NK Cell LGL Lymphoma or NK Cell LGL Leukemia, each of which have around 10 diagnoses a year. He also said that my case is indolent, or slow to progress, which means that I can be treated with oral chemotherapy, which should hopefully get rid of it. So I am not making this post to ask for money (as my health insurance *should* cover everything, if it doesn't, i'll think of something), I am simply asking for support from a community I have been a part of for nine years now. So I have decided to start up a blog which is a work in progress. So come and visit it, post comments, and if you want, crosspost this topic/post on the forums of your alliances. Again, the link to my blog is http://igotcancer.net. Edited May 14, 2015 by bros2 Link to comment Share on other sites More sharing options...
Razgriz24 Posted May 14, 2015 Report Share Posted May 14, 2015 (edited) Good luck bros! The WFF stands by your side sir. "Get well soon" doesnt really work here, but "never give up" does :) Edited May 14, 2015 by Nord Belka Link to comment Share on other sites More sharing options...
YOLO SWAG Posted May 14, 2015 Report Share Posted May 14, 2015 My thoughts are with you, bros. Link to comment Share on other sites More sharing options...
Stonewall14 Posted May 14, 2015 Report Share Posted May 14, 2015 Thoughts and prayers and Godspeed on recovery! Link to comment Share on other sites More sharing options...
iamthey Posted May 14, 2015 Report Share Posted May 14, 2015 Pretty awful news, you'll be in my thoughts, and best wishes as you undergo the treatments. Link to comment Share on other sites More sharing options...
Rebel Virginia Posted May 14, 2015 Report Share Posted May 14, 2015 Do any of you science folks if NK Cell LCL Leukemia is at all similar to acute myeloid leukemia (AML), myelodysplastic syndrome (MDS), chronic lymphocytic leukemia (CLL), b-cell lymphoma, or myeloma. If so, would any research regarding the genetics of these diseases and treatments be at all relevant to someone with NK Cell LCL Leukemia? Thanks. Link to comment Share on other sites More sharing options...
Farrin Xies Posted May 14, 2015 Report Share Posted May 14, 2015 Godspeed and I hope and pray for a quick recovery, bros. You've always been one of the good guys in my mind. Link to comment Share on other sites More sharing options...
bros Posted May 14, 2015 Author Report Share Posted May 14, 2015 Do any of you science folks if NK Cell LCL Leukemia is at all similar to acute myeloid leukemia (AML), myelodysplastic syndrome (MDS), chronic lymphocytic leukemia (CLL), b-cell lymphoma, or myeloma. If so, would any research regarding the genetics of these diseases and treatments be at all relevant to someone with NK Cell LCL Leukemia? Thanks. Based on my flow cytometry and other bloodwork, it seems totally different - especially in my case. I have antigens that are associated with both T-Cells and NK Cells, and the cells stain as T-Cells, but have all the properties of NK Cells - including the antigens that are with them. But I am CD3-, which is especially peculiar. Link to comment Share on other sites More sharing options...
Luckao Posted May 14, 2015 Report Share Posted May 14, 2015 Kick its ass, bros. Link to comment Share on other sites More sharing options...
shavar Posted May 14, 2015 Report Share Posted May 14, 2015 Unfortunately we haven't crossed paths in our adventures on planet Bob until now. I am a huge believer in GOD and the power of Prayer. I will keep you in my thoughts and daily prayers as you fight the fight of your life, GOD speed (I like the blog) ;) Link to comment Share on other sites More sharing options...
Lady Dakota Posted May 14, 2015 Report Share Posted May 14, 2015 Aww I want to give you hugs, but I'll pray instead. I'm sorry sweetie, but I firmly believe someone as strong as yourself has this beat. Link to comment Share on other sites More sharing options...
bros Posted May 14, 2015 Author Report Share Posted May 14, 2015 Aww I want to give you hugs, but I'll pray instead. I'm sorry sweetie, but I firmly believe someone as strong as yourself has this beat. E-hugs are good, and viewing the blog is cool :P Link to comment Share on other sites More sharing options...
Karasov Posted May 14, 2015 Report Share Posted May 14, 2015 Best of luck, I'm sure that you'll beat this. Link to comment Share on other sites More sharing options...
JoshuaR Posted May 15, 2015 Report Share Posted May 15, 2015 Best of luck to you, bros. Link to comment Share on other sites More sharing options...
Avakael Posted May 15, 2015 Report Share Posted May 15, 2015 Sounds like you probably caught it fairly early. Good luck slaying the dragon. :) Link to comment Share on other sites More sharing options...
Master Hakai Posted May 15, 2015 Report Share Posted May 15, 2015 Damn, that is some serious crap. I'll be following that blog, best of luck to you. Link to comment Share on other sites More sharing options...
Rebel Virginia Posted May 15, 2015 Report Share Posted May 15, 2015 (edited) Based on my flow cytometry and other bloodwork, it seems totally different - especially in my case. I have antigens that are associated with both T-Cells and NK Cells, and the cells stain as T-Cells, but have all the properties of NK Cells - including the antigens that are with them. But I am CD3-, which is especially peculiar. Does anyone else have a second opinion? If so, speak soon, My work brings me into contact with some of the latest research on these cancers. However, understand I'm not a doctor or a scientist, but merely a humble bureaucrat. Next week I will be reviewing the budgets for various project proposals, during the course of which I will have to also review the scientific proposal. These are some large documents (20+ pages) for someone with limited scientific background. Typically I will only read the highest level information in regards to the science, as my primary focus would be in regards the budgets, organizational structure of the project, and compliance with state and federal regulations (particularly in regards to the use of funds). For me to veer away from this and to give a greater focus on the details of the science represents hours of time for each of these five cancers. All in all, it could add up to two workdays (at least) for me to produce a detailed report. Our office is understaffed as it is. My time is very valuable (please do not underestimate the importance of good administrative support in regards to a large project). If I am to distract from my primary goals to focus on summarizing the research that may or may not be useful for bros, I need to know if it will be worth my time. Edited May 15, 2015 by Rebel Virginia Link to comment Share on other sites More sharing options...
Sir Kiloist Posted May 15, 2015 Report Share Posted May 15, 2015 Wish you all the best in overcoming this. Link to comment Share on other sites More sharing options...
bros Posted May 15, 2015 Author Report Share Posted May 15, 2015 Does anyone else have a second opinion? If so, speak soon, My work brings me into contact with some of the latest research on these cancers. However, understand I'm not a doctor or a scientist, but merely a humble bureaucrat. Next week I will be reviewing the budgets for various project proposals, during the course of which I will have to also review the scientific proposal. These are some large documents (20+ pages) for someone with limited scientific background. Typically I will only read the highest level information in regards to the science, as my primary focus would be in regards the budgets, organizational structure of the project, and compliance with state and federal regulations (particularly in regards to the use of funds). For me to veer away from this and to give a greater focus on the details of the science represents hours of time for each of these five cancers. All in all, it could add up to two workdays (at least) for me to produce a detailed report. Our office is understaffed as it is. My time is very valuable (please do not underestimate the importance of good administrative support in regards to a large project). If I am to distract from my primary goals to focus on summarizing the research that may or may not be useful for bros, I need to know if it will be worth my time. If it is a proposal by Thomas Loughran or a person at the Center for Lymphoid Malignancies, Columbia University - might be worth looking at. I'll see the doctor next week, but I am pretty sure NK Cell LGL Leukemia and NK Cell LGL Lymphoma are different from AML/CLL/MDS/B-Cell Lymphoma and the last one you mentioned. Link to comment Share on other sites More sharing options...
Rebel Virginia Posted May 15, 2015 Report Share Posted May 15, 2015 If it is a proposal by Thomas Loughran or a person at the Center for Lymphoid Malignancies, Columbia University - might be worth looking at. I'll see the doctor next week, but I am pretty sure NK Cell LGL Leukemia and NK Cell LGL Lymphoma are different from AML/CLL/MDS/B-Cell Lymphoma and the last one you mentioned. Alright. When I review the proposals next week I'll key an eye out for Thomas Loughran and Columbia University. One component we require of the proposals is an overview of developments at other institutions that might be relevant to the projects. Link to comment Share on other sites More sharing options...
keeology Posted May 15, 2015 Report Share Posted May 15, 2015 Prayers for Healing Link to comment Share on other sites More sharing options...
trimm Posted May 15, 2015 Report Share Posted May 15, 2015 May God be with you, and bring you a speedy recovery bros. Link to comment Share on other sites More sharing options...
bros Posted May 15, 2015 Author Report Share Posted May 15, 2015 Alright. When I review the proposals next week I'll key an eye out for Thomas Loughran and Columbia University. One component we require of the proposals is an overview of developments at other institutions that might be relevant to the projects. Loughran is at UVA, btw. Link to comment Share on other sites More sharing options...
Caliph Posted May 15, 2015 Report Share Posted May 15, 2015 Fuck man, thats too bad. Tons of people are getting cancer these days. Keep up the good attitude mate. Link to comment Share on other sites More sharing options...
Duke Nukem Posted May 15, 2015 Report Share Posted May 15, 2015 I'm praying for you, Bros. Link to comment Share on other sites More sharing options...
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